Hospice Resources and Related Information

These hospice resources are designed to help provide better understanding about hospice care services and related resources of interest and support. They do not intend to offer specific medical advice. Individuals are urged to consult with their health care providers for diagnosis and treatment and for personal health care questions.

Hospice Care and End-of-Life Planning

Oregon Health and Science University - Center for Ethics in Healthcare - Website devoted to information to patient and families concerning advance directives and POLST - Click here for information and videos for patients and families concerning POLST

Communicating Your End-of-Life Wishes - developed by the National Hospice Foundation, "Communicating Your End-of-Life Wishes" is available online free at (www.hospiceinfo.org.)

Respecting Choices Advance Care Planning - Gunderson Lutheran provides free online resources for advance care planning programs at (www.gundluth.org/eolprograms.)

Five Wishes - a free - though not "printable" - Adobe Acrobat version of Aging with Dignity's "Five Wishes" is available online at ( www.agingwithdignity.org/5wishes.html.)

Hospice Net (www.hospicenet.org) - Information for patients and families facing terminal illness.

Home Care Online (www.nahc.org) - National Association for Home Care (NAHC) is committed to representing the interests of the home care and hospice community.

Hospice Foundation of America (www.hospicefoundation.org) - A nonprofit organization that promotes hospice care and works to educate professionals and the families they serve in issues relating to care giving, terminal illness, loss and bereavement.

American Hospice Foundation (www.americanhospice.org) - Offers helpful articles, publications, workshops and additional links of interest.

The National Hospice and Palliative Care Organization (www.nhpco.org) - The largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States.

Oregon Hospice Association (www.oregonhospice.org) - Information about Oregon hospice care.

Association for Death Education and Counseling (www.adec.org) - Offers education on death, bereavement counseling, and care of the dying.

Hospice Web (www.hospiceweb.net) - General hospice links and hundreds of hospice provider links indexed by state.

On Our Own Terms (www.pbs.org/wnet/onourownterms) - Bill Moyers examines death and dying issues.

Children’s Hospice International (www.chionline.org) - This organization recognizes the right and need for children and their families to choose health care and support whether in their own home, hospital, or hospice care facility.

Initiative for Pediatric Palliative Care (www.ippcweb.org)  - The Initiative for Pediatric Palliative Care (IPPC) is both an education and a quality improvement effort, aimed at enhancing family-centered care for children living with life-threatening conditions.

Growth House, Inc. (www.growthhouse.org) - International web site of resources focusing on life-threatening illness and end of life care.

DyingWell.org (www.dyingwell.org) - This web site provides written resources and information from Dr. Ira Byock, long time palliative care physician and advocate for improved end-of-life care.

Dream Foundation (www.dreamfoundation.com) - The Dream Foundation is the first national organization granting dreams to terminally ill adults.

Fairy Godmother (www.fairygodmother.com) - This foundation grants wishes nationally to loved ones facing terminal illness.

Aging

American Association of Retired Persons (AARP) (www.aarp.org) - Offers resources and help for those over 50.

AgeNet (www.agenet.com) - Offers a comprehensive, national eldercare network to meet the specific needs of the fast growing aging population and their adult care giving children.

American Geriatric Society (www.americangeriatrics.org) - An organization of health care providers dedicated to improving the health and well being of all older adults.

Alzheimer Association (http://www.alz.org/) - Covers basic information about the Alzheimer’s Association: for persons with Alzheimer’s disease or for caregivers, health care professionals and researchers.

Cancer

American Cancer Society (www.cancer.org) - The Society provides information on all aspects of cancer through a toll-free information line, web site, and published materials.

National Kidney Cancer Association (www.CureKidneyCancer.org) - An organization of patients, families, doctors and healthcare professionals involved with kidney cancer.

National Children’s Cancer Society (www.NationalChildrensCancerSociety.com) – Organization that helps children with cancer through our nationwide programs and services.

American Lung Cancer (http://www.lungusa.org) - Offers information on lung disease in all its forms.

Susan G. Komen Breast Cancer Foundation (http://www.komen.org) - Offers information, resources and additional links on breast cancer.

Cancer Net (www.cancernet.nci.nih.gov) – Current information from the National Cancer Institute.

Caregiving Resources

Family Caregiver Alliance (www.caregiver.org) - Addresses the needs of families and friends providing long-term care at home.

ElderWeb (www.elderweb.com) - Contains over 6,000 reviewed links to long term care information, as well as an expanded library of articles and reports, news, and events.

Growth House, Inc. (www.growthhouse.org) - Provides information and referral services for agencies working with death and dying issues.

Bill Moyers (www.pbs.org/wnet/onourownterms) - Information based on Bill Moyers' two year research on death and dying.

National Family Caregivers Association (www.nfcacares.org) - A grass roots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged or disabled loved ones.

Caring Bridge (www.caringbridge.org) - Free, personalized websites that support and connect loved ones during critical illness, treatment, and recovery.

Spiritual Resources related to end-of-life care

Duke Institute on End of Live Care (http://www.iceol.duke.edu/newsletter/2006fall.html)    

Association for Clinical Pastoral Education (www.acpe.edu) - A professional organization representing many different faith and cultural traditions. Committed to advancing theological education in any setting where ministry is being practiced.

American Association of Pastoral Counselors (www.aapc.org) - Provides theological, spiritual, ethical, and clinical counseling. Also provides information on locating a clinical counselor near you.

George Washington University Institute for Spirituality and Health (www.gwish.org) - University based organization working to provide a more compassionate system of health care. Focus is on educational and clinical issues related to spirituality and health. Founder and director is Christina M. Puchalski, MD. Dr. Puchalski has published on spirituality and health care in journals such as the Journal of the American Medical Association, Journal of Palliative Medicine, and Clinics in geriatric Medicine.

National Association of Catholic Chaplains (www.nacc.org) - Professional organization for certified chaplains ad clinical pastoral educators who participate in the healing mission of Jesus Christ. Provides standards, advocacy, education, and professional development.

National Association of Jewish Chaplains (www.najc.org) - Professional organization for Rabbis, Cantors, and other Jewish professional functioning as chaplains. Provides services and resources to the Jewish community and general community on issues of pastoral and spiritual care based on Jewish traditions and services.

Last Passages (www.albany.edu/aging/lastpassages) - End of life care for those with developmental disabilities

Association for Retired Persons Grief Resources    (www.aarp.org/families/grief_loss/)

Compassionate Books and Resources for Grief and Loss   (www.compassionbooks.com)

Compassionate Friends (www.compassionatefriends.org) - Support for those who have experienced the death of a child

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