Hospice and End-of-Life Resources

Oregon Health and Science University (www.ohsu.edu/polst) - Website devoted to information to patient and families concerning advance directives and POLST.

Respecting Choices Advance Care Planning - Gunderson Lutheran provides free online resources for advance care planning programs at (www.gundluth.org/eolprograms.)

Five Wishes - a free - though not "printable" - Adobe Acrobat version of Aging with Dignity's "Five Wishes" is available online at ( www.agingwithdignity.org/5wishes.html.)

Hospice Net (www.hospicenet.org) - Information for patients and families facing terminal illness.

Home Care Online (www.nahc.org) - National Association for Home Care (NAHC) is committed to representing the interests of the home care and hospice community.

Hospice Foundation of America (www.hospicefoundation.org) - A nonprofit organization that promotes hospice care and works to educate professionals and the families they serve in issues relating to care giving, terminal illness, loss and bereavement.

American Hospice Foundation (www.americanhospice.org) - Offers helpful articles, publications, workshops and additional links of interest.

The National Hospice and Palliative Care Organization (www.nhpco.org) - The largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States.

Oregon Hospice Association (www.oregonhospice.org) - Information about Oregon hospice care.

Association for Death Education and Counseling (www.adec.org) - Offers education on death, bereavement counseling, and care of the dying.

On Our Own Terms (www.pbs.org/wnet/onourownterms) - Bill Moyers examines death and dying issues.

Children’s Hospice International (www.chionline.org) - This organization recognizes the right and need for children and their families to choose health care and support whether in their own home, hospital, or hospice care facility.

Initiative for Pediatric Palliative Care (www.ippcweb.org)  - The Initiative for Pediatric Palliative Care (IPPC) is both an education and a quality improvement effort, aimed at enhancing family-centered care for children living with life-threatening conditions.

Growth House, Inc. (www.growthhouse.org) - International web site of resources focusing on life-threatening illness and end of life care.

Coping with a Terminal Illness (www.terminalillness.co.uk/home.htm) - A UK website which includes resources, articles, and information for those diagnosed with a terminal illness and their friends and relatives.

DyingWell.org (www.dyingwell.org) - This web site provides written resources and information from Dr. Ira Byock, long time palliative care physician and advocate for improved end-of-life care.

Dream Foundation (www.dreamfoundation.org/index.php) - The Dream Foundation is the first national organization granting dreams to terminally ill adults.

Fairy Godmother (www.fairygodmother.com) - This foundation grants wishes nationally to loved ones facing terminal illness.

Hospice Center  (www.cms.hhs.gov/center/hospice.asp)  - Questions and answers about Hospice Medicare and Medicaid benefits.

Barbara Karnes Books (www.gonefrommysight.com) - Booklets about living with a life-limiting illness, the dying process, and grieving.  Available in different languages including Spanish and Russian.

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